Privacy policy

Purpose:

Leukaemia Care is committed to protecting your personal data and respecting your privacy. This privacy notice explains what data we collect, how we use it, and your rights under UK data protection law.

Who we are:

We are Leukaemia Care, a UK charity supporting anyone affected by leukaemia, MDS or MPN. Our registered address is:

Leukaemia Care

One Birch Court, Blackpole East, Worcester, WR3 8SG

Phone: 01905 755977

Email: communications@leukaemiacare.org.uk

We are a registered charity in England and Wales and act as the Data Controller when processing your personal data.

We may collect and process the following personal data:

• Personal identifiers: Name, title, date of birth, and address
• Contact details: Phone number and email address
• Demographic data (if you choose to provide it): Race, religion, sexual orientation
• Medical information: Type of leukaemia or related condition (if provided)
• Employment data: If shared with us or obtained through publicly available sources
• Support history: Your connection to the charity, services accessed, or donations made
• Cookie and website usage data: Please see our separate Cookie Policy
• Supplier contact information: If you represent a contractor or third-party partner

We may collect personal data:

Directly from you:

• When you fill in a form, register for services, request materials, or make a donation
• When you contact us via phone, email, or online
• When signing up for newsletters or events
• Through surveys or petitions

Indirectly from third parties:

• From event partners when you opt to support Leukaemia Care
• From healthcare professionals or charities with whom you have given permission to share your data
• From publicly available sources (e.g., Companies House, LinkedIn, electoral roll) for fundraising or due diligence

Why we use your data:

We use your data to:

• Provide support services, information, or materials you’ve requested
• Process donations and Gift Aid
• Send you updates, newsletters, or fundraising appeals (if you’ve opted in)
• Analyse service reach and improve inclusivity
• Understand how you interact with our website
• Comply with legal or regulatory obligations

Under UK GDPR, we rely on the following lawful bases:

• Consent – For marketing and newsletters (you may withdraw at any time)
• Contract – When processing services or transactions you’ve requested
• Legitimate interest – For fundraising, supporter analysis, and service improvement (only where your rights are not overridden)
• Legal obligation – For example, HMRC requirements related to donations

In some cases, we collect and process special category personal data, such as health information (e.g. type of leukaemia) or demographic details (e.g. ethnicity, religious beliefs, or sexual orientation). Under UK GDPR, this type of data is subject to enhanced protections.
We only process this data where you have given us your explicit consent, or where it is necessary for reasons of substantial public interest, such as:

• Providing tailored support services to individuals affected by blood cancer
• Monitoring equality and diversity to ensure fair access to our services
• Complying with safeguarding requirements
• Conducting research or analysis to improve our services, where appropriate safeguards are in place

You have the right to withdraw your consent at any time. To do so, please contact our Data Protection Officer using the details in the below section

To tailor our fundraising and engagement efforts, we may use wealth screening and profiling. This involves reviewing publicly available information (e.g., property records, Companies House, rich lists, etc.) to assess a potential supporter’s capacity to give or engage.

We use:

• Internal research
• Trusted third-party fundraising partners
• Data gathered for due diligence purposes

You always have the right to object to this processing. To opt out, contact our Data Protection Officer:

Monica Izmajlowicz – Chief Operating Officer

Email: monica.izmajlowicz@leukaemiacare.org.uk

Phone: 01905 755977

We do not sell or rent your data to third parties.

We may share your data with trusted service providers for essential services, such as:

• Mailing houses (for magazine delivery)
• Event platforms
• IT and database support providers

All third parties are required to comply with UK data protection law and act only under our instructions.

We retain personal data only for as long as necessary to fulfil the purposes we collected it for, including legal, accounting, or reporting obligations.

• Contact and service data: Typically held for up to 7 years after last contact
• Survey data: Held anonymously or until consent is withdrawn
• Donor and fundraising data: Held for up to 7 years for tax and Gift Aid compliance

How we protect your data

Your personal data is securely stored in Raiser’s Edge NXT, protected by:

• Role-based access control
• Two-factor authentication
• Encryption and regular data audits

We also conduct regular security reviews and staff training to ensure ongoing compliance.

You have the right to:

• Access your data
• Correct inaccurate or incomplete information
• Request deletion of your data in some circumstances
• Restrict processing or object to certain types of processing
• Request data portability to another service

To make a request, contact our Data Protection Officer:

Monica Izmajlowicz – Chief Operating Officer

Email: monica.izmajlowicz@leukaemiacare.org.uk

Phone: 01905 755977

Our website uses cookies to improve your browsing experience and analyse site performance. We use:

• Necessary cookies for site functionality
• Analytics cookies (e.g. Google Analytics, Hotjar)
• Preference and targeting cookies for personalised content

You can manage cookies via your browser settings. More details can be found in our full Cookie Policy  here.

If you’re unhappy with how we handle your data, you can contact us:

Leukaemia Care

FAO Monica Izmajlowicz, Chief Operating Officer

One Birch Court, Blackpole East, Worcester, WR3 8SG

Email: monica.izmajlowicz@leukaemiacare.org.uk

Phone: 01905 755977

You can also contact the UK’s Information Commissioner’s Office (ICO):

Wycliffe House, Water Lane, Wilmslow, SK9 5AF

Website: www.ico.org.uk

Helpline: 0303 123 1113