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These inspirational stories are personal accounts of the experiences of patients, carers or fundraisers - they all have a story to tell about their experience with a blood cancer.
Georgina Rowley visited her GP a number of times during the latter half of 2019, but her constant infections were not seen as cause for concern. Then, on New Year’s Eve, a blood test finally gave the 19-year-old the answers she had been looking for – her symptoms were the result of acute myeloid leukaemia (AML). Now in remission, Georgina is sharing her Spot Leukaemia story.
When Sarah-Jane kept coming down with repeated infections, she took herself to her GP. However, it was 14 months until Sarah-Jane was finally listened to and given her diagnosis of hairy cell leukaemia. Now in remission, she tells her story.
Lucy had been enjoying a holiday in Mauritius when she began to feel unwell. However, she hadn’t wanted to trouble her GP with her symptoms, which unbeknownst to Lucy were textbook signs of leukaemia. Five years on from her diagnosis of biphenotypic acute leukaemia (BAL), Lucy is sharing her Spot Leukaemia story.
It took Nicola Baker two and a half years of trips back and forth to the GP before she got her diagnosis of chronic lymphocytic leukaemia. Here, she shares her road to diagnosis, and how she’s coped since.
Sophie was just 20 when she started getting headaches and neck pain. Her GP assumed that, as she was a student, it might be meningitis, but it came as a shock to all when it was discovered she had B-cell acute lymphoblastic leukaemia. Now in remission following pioneering CAR-T therapy, Sophie shares her Spot Leukaemia story.
When Sarah began to feel unusually tired, she thought she was probably run down. However, as her symptoms progressed, she took herself to her GP, but after three visits she was forced to push for a blood test. Now in remission from acute myeloid leukaemia, Sarah shares her Spot Leukaemia story.
When Ian began to feel tired and generally unwell, he assumed his symptoms would soon pass. However, as his symptoms got worse, Ian booked appointments with his GP and a dentist, and even visited A&E, but no one spotted his symptoms. Now over a decade since his diagnosis, Ian shares his Spot Leukaemia story.
When David began noticing bruises and experiencing breathlessness, he took himself to see his GP. However, David’s symptoms were misdiagnosed at each visit, until a blood test for suspected liver problems revealed that David in fact had acute promyelocytic leukaemia (APL), a diagnosis that almost came too late. Still in remission 18 years later, David shares his Spot Leukaemia story.
Lauren was 19 when she began to feel unusually tired, but put this down to a busy social life. When she visited the GP about a cold and an enlarged gland that wouldn’t go, she hadn’t expected to be diagnosed with chronic myeloid leukaemia (CML) just two days later. Now aged 27, Lauren is sharing her Spot Leukaemia story.
Emma Allen was just 31 when she was diagnosed with essential thrombocythaemia (ET), and later prefibrotic myelofibrosis (Pre-MF) and polycythaemia vera (PV). However, following her diagnosis, it was discovered that her platelet count had in fact been abnormal for at least seven years, yet had never been investigated further. Here, she shares her Spot Leukaemia story.
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