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Today is National Day of Reflection, a year since we were told to stay at home, shield and protect our loved ones and the NHS.
On the 26th March was the first #ClapForCarers. Where we all cheered from our doorsteps to show our support to all the frontline workers.
We'll be joining #ClapForCarers at 8pm! 👏👏👏 pic.twitter.com/0xsTQ1u4Rf
— Leukaemia Care (@LeukaemiaCareUK) March 26, 2020
To help those who were shielding we designed a weekly newsletter full of top news information around the pandemic as well as ideas on how to keep busy.
Take a look at the first edition here.
On the 8th April 2020, our Patient Advocacy team launched our first online webinars.
Our first webinars were on COVID-19 and were split for those with an acute leukaemia diagnosis, chronic myeloid leukaemia (CML), chronic lymphocytic leukaemia (CLL) and Myeloproliferative neoplasms (MPN).
Since then we have done 28 online webinars.
You can catch up on all our webinars here.
We’ve produced a free interim edition of our magazine, Leukaemia Matters. Online-only, this issue features articles from patients on how they’re coping, along with the latest advice on your finances from our Advocacy team > https://t.co/e0jESIRLPX pic.twitter.com/8VqMYbuNIz
— Leukaemia Care (@LeukaemiaCareUK) April 14, 2020
Today is AML World Awareness Day. #KnowAML
Acute myeloid leukaemia is the most common type of acute leukaemia, representing 80% of acute leukaemias in adults and 15% to 20% in children.
Share this post and help raise awareness of AML and its symptoms pic.twitter.com/3iy1uLJquY
— Leukaemia Care (@LeukaemiaCareUK) April 21, 2020
Good luck to our wonderful #TwoPointSixChallenge fundraisers taking on their challenges today! Don't forget to tag us!
It's not too late to join in and show your support for #bloodcancer patients during this difficult time. Find out more here > https://t.co/WxvoTnnueq pic.twitter.com/eXAohPCQsZ
— Leukaemia Care (@LeukaemiaCareUK) April 26, 2020
On 7th May 2020 we hosted our first joint webinar with CLL Support on CLL and COVID-19.
It's World Blood Cancer Day, a time for us to come together & support #bloodcancer patients. #WBCD
And what better way to do that than to sign up to the stem cell register?
Become a donor by joining the @DKMS_uk or @AnthonyNolan register. You might save someone's life. pic.twitter.com/3mBcOJWlHL
— Leukaemia Care (@LeukaemiaCareUK) May 28, 2020
We've been working with @CLLSupport and the @UkCll forum to follow the patient experience of those #CLL patients in shielding
The interim report on our first two surveys is now online#spotleukaemia https://t.co/XurDx2xAOi pic.twitter.com/THxa0IkGf0
— Leukaemia Care (@LeukaemiaCareUK) May 29, 2020
We'd also like to say a massive thank you to Ann Revely, who has CLL and wanted to do something to support us during lockdown. As she's been shielding, she decided the best thing she could do was a head shave, and in the process she's raised £800 pic.twitter.com/prRpvPKDew
— Leukaemia Care (@LeukaemiaCareUK) June 6, 2020
We'd like to say a huge thank you to one of our fundraisers and CLL patient John Price, who spent the entirety of May walking a marathon around his garden, raising over £180 for all those affected by blood cancer. pic.twitter.com/woFSoES5fQ
— Leukaemia Care (@LeukaemiaCareUK) June 6, 2020
Virtual Quiz’s became the thing to do in 2020 as it allowed us to connect with family and friends while also having some fun.
On 13th June, Quizmaster Nicole hosted LC’s first virtual Quiz and raised £750.
#DYK: in 2014, 67% of blood donated to the NHS was used to treat anaemia, cancer and blood disorders?
14th June is #WorldBloodDonorDay. If you can, please consider signing up to give blood. Sessions are still running & extra safety measures have been put in place. @GiveBloodNHS pic.twitter.com/EevNkUXjZ2
— Leukaemia Care (@LeukaemiaCareUK) June 14, 2020
We'd like to say a big thank you to Barry Willoughby, who has spent his time shielding due to his hairy cell leukaemia diagnosis making and selling bird table feeders in aid of Leukaemia Care!
In the process, Barry has raised an amazing £500! pic.twitter.com/KwrataOufz
— Leukaemia Care (@LeukaemiaCareUK) June 18, 2020
Have you read the new issue of our free magazine?
Inside, you'll find inspiring patient stories from two carers, a guide to mindfulness, and a special recipe!
Read it here > https://t.co/jNmujWbbeC pic.twitter.com/g7Lf27Ohtk
— Leukaemia Care (@LeukaemiaCareUK) June 28, 2020
https://twitter.com/LeukaemiaCareUK/status/1279080291819290625
As shielding begins to lift, some have told us they'd like a face mask to tell others to keep a distance. We're now hoping to bring this idea to life with your help.
Find out more about how you can help crowdfund our social distancing face masks > https://t.co/daqDQa773e pic.twitter.com/oki4o886iM
— Leukaemia Care (@LeukaemiaCareUK) July 15, 2020
The National Institute of Health and Care Excellence (NICE) have today made an announcement for the recommendation of gilteritinib as an option in adults with relapsed or refractory FLT3-positive acute myeloid leukaemia (AML).
You can read more here.
We have a brand-new, free booklet now available to download!
Our Chronic Lymphocytic Leukaemia (CLL) – Starting Active Treatment booklet answers your questions on when and why CLL patients start active treatment, and what treatments may be used > https://t.co/itWNSVAqs2 pic.twitter.com/2c51CnJFoj
— Leukaemia Care (@LeukaemiaCareUK) July 19, 2020
Shielding pauses in England, NI and Scotland today, and from 16th August in Wales. We're here to advise you on any potential risks and how you can stay safe.
Learn what risks may remain > https://t.co/SHCzNQGQGU
Get tips on going outside safely > https://t.co/XwKPQtNWVr pic.twitter.com/aaPjZHMfz1
— Leukaemia Care (@LeukaemiaCareUK) July 31, 2020
We'd like to say a huge thank you to Toni Perham-Lake and Bar Vino, who have raised a whopping £1,704.52 for Leukaemia Care!
Toni has been busy raising funds through Facebook fundraisers and events at her bar, Bar Vino, in Essex. Thank you for supporting #bloodcancer patients! pic.twitter.com/c1B9BRDm2I
— Leukaemia Care (@LeukaemiaCareUK) August 2, 2020
The countdown is on.
4 weeks to go until #WorldLeukemiaDay⁰⁰Find out how to get involved and raise awareness here > https://t.co/juYxAuRrlj #WLD20 pic.twitter.com/j9IlzutVg7
— Leukaemia Care (@LeukaemiaCareUK) August 7, 2020
Last month, we launched our 'Keep your distance' face masks. These masks sold out so we have designed a simple Spot Leukaemia face mask, as pictured below.
Find out more here > https://t.co/f8UbLjtw2y
£1 per mask will be donated to LC. pic.twitter.com/g7frKOc0wG
— Leukaemia Care (@LeukaemiaCareUK) August 18, 2020
Alex had just moved abroad when she began to feel exhausted and noticed bruising.
After a Google search brought up leukaemia, she saw her GP, a decision that saved her life.
To kick off this year's #SpotLeukaemia campaign, Alex is sharing her story > https://t.co/V6fRSYjrJh pic.twitter.com/JIYWOS1ubf
— Leukaemia Care (@LeukaemiaCareUK) August 24, 2020
"I would have not googled the symptoms if it was not for Spot Leukaemia."
When Mattia spotted unusual bruising, he remembered the #SpotLeukaemia posts a friend had shared. Then, just 48hrs after spotting his symptoms, he was diagnosed with #leukaemia > https://t.co/GF7bMyXWBq pic.twitter.com/uxowUv8MyB
— Leukaemia Care (@LeukaemiaCareUK) September 1, 2020
Sarah Hollender & Sophie Wheldon have shared their #SpotLeukaemia stories to help raise awareness of the signs and symptoms
https://www.birminghammail.co.uk/news/midlands-news/we-were-days-away-death-18865373.amp
Today is #WorldLeukemiaDay ⁰⁰
Help raise awareness of leukaemia and it’s symptoms.
Find out more here 👉 https://t.co/juYxAuRrlj⁰⁰#WLD20 pic.twitter.com/Y1lFNcwSKb
— Leukaemia Care (@LeukaemiaCareUK) September 4, 2020
@DrDawnHarper Pls RT. Today is #WorldLeukemiaDay, help raise awareness of the symptoms of leukaemia.
🔴Fatigue
🔴Bruising & bleeding
🔴Fever & night sweats
🔴Repeated infections
🔴Bone & joint pain
🔴Weak or breathlesshttps://t.co/juYxAuRrlj #WLD20 pic.twitter.com/3wQjHT158n— Leukaemia Care (@LeukaemiaCareUK) September 4, 2020
@amandaclapham Pls RT. Today is #WorldLeukemiaDay, help raise awareness of the symptoms of leukaemia.
🔴Fatigue
🔴Bruising & bleeding
🔴Fever & night sweats
🔴Repeated infections
🔴Bone & joint pain
🔴Weak or breathlesshttps://t.co/juYxAuRrlj #WLD20 pic.twitter.com/GiFmmZXEj2— Leukaemia Care (@LeukaemiaCareUK) September 4, 2020
@WWERomanReigns Pls RT. Today is #WorldLeukemiaDay, help raise awareness of the symptoms of leukaemia.
🔴Fatigue
🔴Bruising & bleeding
🔴Fever & night sweats
🔴Repeated infections
🔴Bone & joint pain
🔴Weak or breathlesshttps://t.co/juYxAuRrlj #WLD20 pic.twitter.com/2M5JfwuMji— Leukaemia Care (@LeukaemiaCareUK) September 4, 2020
The Scottish Medicine Consortium (SMC) has recommended the use of gilteritinib for patients who have relapsed or refractory acute myeloid leukaemia (AML) with a FLT3 mutation. Find out what this means for patients in Scotland here.
Read more here.
For #MPNAwarenessDay, we asked MPN patients to share their experiences.
Read what they had to say about their diagnosis, symptoms and what they've learnt.
If you have been diagnosed with an MPN, comment and RT to help raise awareness of these lesser-known conditions pic.twitter.com/VvhtGxBdoQ
— Leukaemia Care (@LeukaemiaCareUK) September 10, 2020
Today is #WorldLymphomaAwarenessDay.
Lymphoma is a blood cancer like leukaemia.
The most common symptoms of lymphoma are:
🟣 Weight loss
🟣 Fatigue
🟣 Swollen lymph nodes
🟣 Itching
🟣 Night sweatsFor more information, see @LymphomaAction > https://t.co/9LqUSOsklr pic.twitter.com/J0VDFoaoie
— Leukaemia Care (@LeukaemiaCareUK) September 15, 2020
Today is #WorldCMLDay.
Chronic myeloid leukaemia (CML) is a form of blood cancer, which affects the white blood cells known as myeloid cells. It is a slowly progressing form of leukaemia.
Learn more about #WCMLDay20 and @cmlnet here > https://t.co/Iy3belDpsK pic.twitter.com/tM1X4fLpTM
— Leukaemia Care (@LeukaemiaCareUK) September 22, 2020
The trustees of Leukaemia Care are delighted to announce the appointment of Zack Pemberton-Whiteley as Chief Executive of Leukaemia Care.
Find out more here.
We launched our LC Charity Christmas cards and in total raised £900.
October 4th was when the iconic London Marathon should have taken place, unfortunately, this couldn’t happen and the Virtual London Marathon was created.
The day was a massive success, with 3 members of the LC team taking on the challenge.
On the 3rd of October, we wrote to @MattHancock to ask him to clarify shielding guidance, but also provide support so people are able to take the actions recommended in this new guidance. We have not yet had a response to our letter. pic.twitter.com/dx2RC0F23m
— Leukaemia Care (@LeukaemiaCareUK) October 14, 2020
Thread: So, for the next two weeks we're adding a little Halloween flavour to our #SpotLeukaemia graphics (don't worry @MyelomaUK – the black and orange is temporary) pic.twitter.com/gHAJF4XArC
— Leukaemia Care (@LeukaemiaCareUK) October 21, 2020
#MDS are a group of diseases in which the production of blood cells by the bone marrow is faulty. It is a type of cancer and can sometimes be referred to as 'bone marrow failure'.
RT to help raise awareness of MDS on #MDSWorldAwarenessDay #FacesofMDS @MDS_UK pic.twitter.com/pGMcq1xwTm
— Leukaemia Care (@LeukaemiaCareUK) October 25, 2020
You can now listen to the latest episode of our podcast!
Tune in as we discuss issues related to #bloodcancer amongst the Black community – including Black patients struggling to find stem cell donor matches – and the work that @acltcharity is doing > https://t.co/oXHKMPxjF0 pic.twitter.com/BrqqBfDHfj
— Leukaemia Care (@LeukaemiaCareUK) October 30, 2020
https://twitter.com/LeukaemiaCareUK/status/1323253569911463942
Our team are so excited to be joining this year's virtual #BSH2020 @BritSocHaem.
If you're attending, don't forget to visit the Leukaemia Care virtual stand. pic.twitter.com/FjN6xeexdY
— Leukaemia Care (@LeukaemiaCareUK) November 9, 2020
The National Institute for Health and Care Excellence (NICE) have made recommendations for venetoclax plus obinutuzumab as an option for chronic lymphocytic leukaemia (CLL) patients in England.
Find out more here.
🌟✨Dedicate a star to a loved one this Christmas and help support the work of Leukaemia Care.✨🌟
It's easy to donate. Simply, click on a star of your choice and make a donation > https://t.co/5OW6xoy3Zx
All money raised will support leukaemia patients in 2021 and beyond pic.twitter.com/xa0A88JTuB
— Leukaemia Care (@LeukaemiaCareUK) November 19, 2020
Our Patient Advocacy Healthcare Liaison Officer and CLL patient @NYLCandCLL has been on Sky News today talking about an new trial which could detect the early signs of 50 different types of cancer.
Article here can be viewed online here: https://t.co/fg9PSeaCIv pic.twitter.com/vF8SipjPec
— Leukaemia Care (@LeukaemiaCareUK) November 27, 2020
THREAD: Here at LC, we are all starting to get into the festive spirit. Que your favourite Christmas song!
#SpotLeukaemia pic.twitter.com/SMOzCa7zWu
— Leukaemia Care (@LeukaemiaCareUK) December 1, 2020
When a vaccine was announced we created a handy FAQ article full of information and questions we were being asked via our helpline and advocacy and welfare service.
You can read this here.
Today, Nathan Hall is celebrating 5 years since his bone marrow transplant. Congratulations Nathan!
Nathan shared his story with us in 2019. He is now doing well and studying Biomedical Sciences at the University of York.
Read Nathan's story here > https://t.co/cBbqZ5wRFA pic.twitter.com/lVdm6wuCI3
— Leukaemia Care (@LeukaemiaCareUK) December 3, 2020
The Scottish Medicines Consortium (SMC) have today made recommendations for venetoclax plus obinutuzumab to become a treatment option for certain groups of chronic lymphocytic leukaemia (CLL) patients in Scotland.
You can read more here.
Happy #ChristmasJumperDay
We may all be working from home but here is just some of the LC staff spreading some festive cheer with their Christmas Jumper Day photos. pic.twitter.com/XskT8KhJPf
— Leukaemia Care (@LeukaemiaCareUK) December 11, 2020
When the Oxford vaccine was announced we updated our FAQ article with updated nformation and questions we were being asked via our helpline and advocacy and welfare service.
You can read this here.
Today's lunchtime chat is all about tea, and in particular, what shade of tea is counted as acceptable.
How do you drink your tea? We are anywhere from C5 to F6!@YorkshireTea @PGtips @TwiningsUK please tell us what's correct! pic.twitter.com/0MBJ70cGYs
— Leukaemia Care (@LeukaemiaCareUK) January 12, 2021
THREAD
Wondering what getting a COVID-19 vaccination is like? @whathannahsaid is here to talk you through it. 1/13 pic.twitter.com/0TbAww87UW
— Leukaemia Care (@LeukaemiaCareUK) January 13, 2021
This morning, we wake up to the news that the over 70's plus the clinically extremely vulnerable (CEV) groups will be receiving letters about vaccine invites. This will generate questions so pic.twitter.com/jo5xUkqdie
— Leukaemia Care (@LeukaemiaCareUK) January 18, 2021
Today is #WorldCancerDay.
Do you know the six most common symptoms of leukaemia?
😴 Fatigue
🩸 Bleeding or Bruising
🤮 Repeated Infections
🫁 Breathless or Weak
🥵Fever
🦴Bone or Joint Pain#SpotLeukaemia pic.twitter.com/Tg5zc0UoAi— Leukaemia Care (@LeukaemiaCareUK) February 4, 2021
What a great evening! Thanks so much to @lubankitchen @DaveJCritchley and @auventpr for pulling the event together and everyone for supporting. Warm hearts, full bellies #LuBanCookalong pic.twitter.com/klsSCYaK8s
— Leukaemia Care (@LeukaemiaCareUK) February 11, 2021
Today is #RareDiseaseDay, a time to raise awareness of rare diseases amongst the public, policy makers and healthcare professionals. pic.twitter.com/k5E4KHQFKI
— Leukaemia Care (@LeukaemiaCareUK) February 28, 2021
While Easter eggs are in the shop, it's about time we launched our new egg-cellent symptoms graphics. Can you retweet to share awareness?#SpotLeukaemia pic.twitter.com/EPASnAUDRH
— Leukaemia Care (@LeukaemiaCareUK) March 6, 2021
In today’s coronavirus briefing, the Health Secretary @MattHancock stated that shielding will be paused on the 31st of March. Here is our response to the news: https://t.co/kvFqo2v79j 1/ pic.twitter.com/KNpluniH1D
— Leukaemia Care (@LeukaemiaCareUK) March 17, 2021
The National Institute for Health and Care Excellence (NICE) have made recommendations for acalabrutinib to become a treatment option for certain groups of chronic lymphocytic leukaemia (CLL) patients in England.
Read more here.